At this point I thought it was a goitre but when the results came back showing ... My name is Cy Davies. My doctor noticed it during my physical. . The staging for thyroid cancer patients younger than 55 and those 55 and older are different, so that’s how we’ve separated their stories. He found the lump on my thyroid instantly. At the time I was almost relieved as I was convinced there was something very wrong with me. Read Sonia's thyroid cancer story about getting diagnosed, radiation treatment and life after cancer. Welcome to Butterfly Thyroid Cancer Trust. She wanted to perform a bone scan that afternoon so I had the injection and had to sit and wait on my own in the waiting room for three hours for it to take effect. I have had another MRI scan and further sialograms, but no-one is prepared to remove the residual tissue because of the potential damage to my nerve. Providing information and resources to promote effective diagnosis and appropriate treatment for people with thyroid disorders in the UK. Thyroid Cancer 101. This is a place for thyroid patients to share positive thyroid experiences with others. September 14, 2018 / By Gail Barackman, CPC, CPMA, CEMC. I loved being in the water. Butterfly Thyroid Cancer Trust is the first national supporter of patients with Thyroid Cancer. However, the initial scan showed an extra spot on my collar bone and so it was repeated. They did allow me to find my Mum and tell her, and go out to ‘phone my husband, but my Mum wasn’t allowed to wait with me in the waiting room. Tanya’s pain and misery went away thanks to Natural Desiccated Thyroid in an optimal dose. The second scan indicated a definite spot and half an hour later I had a helical CT scan. Writer Christine Coppa had her thyroid removed because of cancer… I now take three sandocal tablets daily. We are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. I lost my job though. I was 58 when I was diagnosed in 2001. I was 47, my youngest daughter was 14. My eldest son was getting married on May 2nd , my other son was moving house and his wife was expecting their second child in early May. In 2009, I began experiencing joint pain and swelling. I also developed another abscess which did seem to improve with five weeks of antibiotics. She suddenly took second place to me and her operation was rearranged. Chris Lim. Read stories & experiences from patients. We are available on this number on Tuesdays and Fridays from 10 am to 4 pm. Thyroid cancer is relatively rare -- only about 60,000 U.S. cases are diagnosed each year -- and it's one of the most survivable cancers, with … After three visits to a Neurologist and nerve conduction studies, which I had to endure two weeks after my parotidectomy, it seemed that I had low calcium levels. In the March before my diagnosis I had half of my thyroid removed because of a large swelling I had in my neck. September is Thyroid Cancer Awareness month, so I thought I would share my personal experience with diagnostic studies for Thyroid Cancer. ThyCa: Thyroid Cancer Survivors' Association, Inc. is a nonprofit 501(c)(3) organization (tax ID #52-2169434) of thyroid cancer survivors, family members, and health care professionals. Lisa. The stories will give you practical ideas to better manage your situation. IE 11 is not supported. These statistics are for people diagnosed with thyroid cancer in England between 2013 and 2017. Twelve hours after taking the capsule, I woke up with hugely swollen salivary glands, fingers, yellow skin and severe nausea. The annual incidence data for thyroid cancer in the UK from 2008 show 5.1 per 100,000 for women and 1.9 per 100,000 for men. The most common staging system is the TNM system. Hi, my name is Samantha and I am an 18 pregnant woman with medullary thyroid cancer. England, United Kingdom About Blog Thyroid advocate and blogger. Background The clinical management of thyroid cancer is a constantly evolving topic. And I know that there are so many other stories out there to … My name is Chris James, I’m forty nine years old and I was diagnosed with thyroid cancer in May 2013. I’m sure people would say that to have any part of you scanned is horrible in that situation, but I think when it is your head and the scanner is literally spinning an inch from your face for 40 minutes, it is just awful. In genetic cases there is a 50% chance of each child of an affected parent inheriting the faulty gene. I had had a ‘feeling’ there was something wrong with my neck for over a year and numerous symptoms which I now know indicate thyroid cancer. I continued to get checked out, but none of my tests or check-ups showed an issue. Outside these times, please leave a message on our answer phone and we will get back to you as soon as we can. My diagnosis came about from an almost an incidental finding. There are some differences between men and women: 1 year survival. Nine years ago I was diagnosed with papillary thyroid cancer after discovering a lump in my throat. The following month, my right parotid gland swelled and three months later my tongue went numb on the right side due to damage to the right submandibular salivary gland. I’d had laryngitis on and off for a while, but as I’m a receptionist I put it down to talking too much. I’d been told that thyroid cancer tends to have good prognoses. My diagnosis came about from an almost an incidental finding. Up Next. Anyway the hours passed by and I had the bone scan which turned out to be clear. I currently have further appointments planned and am very much hoping that someone will be able to do something to help me. Thyroid cancer is a rare form of cancer, accounting for less than 1% of all cancer cases in the UK. Stories of Strength. I was diagnosed with a papillary thyroid cancer 10 years ago when I was 31. My name is Chris James, I’m forty nine years old and I was diagnosed with thyroid cancer in May 2013. Like most people I knew that I had a thyroid, I never really stopped to think about what it did for me and I certainly had never even heard of thyroid cancer! The booklet explains what thyroid cancer is, and how it is diagnosed and treated. I am so fortunate that she is one … Women are 2 to 3 times more likely to develop thyroid cancer than men. © 2016 Butterfly Thyroid Cancer Trust. In … In September 2009, my VUMC (VU Med Center) physician palpated my thyroid and detected no problem. Two weeks ago I developed another infection in the residual parotid tissue this time on the right side which was swabbed, so I am back to the surgeon again this week for the results. We are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. So I have to live with almost constant pain in the left side of my face which radiates up to my ear and causes dizzy spells. I have undergone four operations, which is unusual, and have had two lots of radioactive iodine treatment. Alfacalcidol and Calcium Supplement Reduction, Kate’s Story and the History of Butterfly Thyroid Cancer Trust. However in winter, it could be difficult to keep the motivation going. Watch later. I want to be close to my family and now to increase awareness of thyroid cancer and its potential effects. Within 10 days I was operated on in the Royal Gwent Hospital. My Thyroid Cancer Story - It's Terminal - 30/01/2019. I had numerous appointments, sialagrams, an MRI scan where the doctor couldn’t inject my vein with the dye and I ended up covered in bruises and bandages, and finally an abscess developed in my right parotid gland, so I was scheduled for surgery to remove the gland in November 2009. The tests showed nothing abnormal. Share. All rights reserved. May 17, 2012. Butterfly Thyroid Cancer Trust has been huge support to me and we were very grateful to receive the Michael Crawley Break Award. Sonia's story. One doctor actually implied that it is my fault that I have had this reaction to it! Thyroid Cancer Stories from Patients and Survivors. I Thyroid Cancer:  Real  Stories About What Really Matters You'll find many people have already walked your path. My sneezing, coughing, and wheezing seemed like springtime allergy symptoms—but they turned out to be thyroid cancer. The following week I received a phone call from my employer, a local college, to say that my department was undergoing a restructure and we were all threatened with redundancy. The Invisible Hypothyroidism. The palsy improved over three months and I have only slight weakness now. It's most common in people aged 35 to 39 years and in those aged 70 years or over. However, it all settled and somehow we got through the following three and half weeks of me not being able to go home because of the children being so little. In 1998 I visited my doctor as I was experiencing chronic hoarseness, some neck discomfort and slight swelling on the left side of the neck. I thought I was too young. To say that it was a shock is putting it mildly. T describes the size of the tumour and whether it has spread into nearby tissues around the thyroid gland.. N describes whether the cancer has spread to the lymph nodes close to the thyroid gland.. M describes whether the cancer has spread to other parts of the body, such as the lungs or the bones (metastatic or secondary cancer). Medullary thyroid cancer (MTC) MTC is rare and arises in the C cells of the thyroid, which produce calcitonin. My face had totally frozen on that side. Some History. My tongue is permanently numb on the right side which makes speech difficult at times and is very hard to deal with. I had planned to have the scan and then go in to Liverpool with my Mum to do some Christmas shopping. In the meantime I had to telephone my Mum to ask her to come back to the hospital to meet me (patients only allowed in Nuclear Medicine) whilst I went through with the scan. Here is my story. I woke up in May 2009 with a hugely swollen and painful left parotid gland. At first, she felt hurt by the comments, but then Emily O'Carroll realized she should probably talk to her doctor. His surgery was … I then had a consultation with the Nuclear Medicine Consultant who told me she thought the cancer had spread to my bone and was in my collar bone. Get in touch with our patient support contacts, To order Dvd's, Leaflets, TSH cards please email us. Then she had thyroid cancer. Major heart surgery was imminent for my little one year old grandson Harri. TANYA’S STORY — Once again, here is an example where getting the “Fibromyalgia” diagnosis may not be what you think. In the midst of all this, I realised my fingers, toes and lips were tingling. We hope it helps you deal with some of the questions or feelings you may have. . It hasn’t to this day. The Consultant said she thought it was just a collection of thyroid cells lodged behind my collar bone but she still wanted me to be admitted four days later to undergo the radio-iodine treatment. I finally got a referral to an ENT consultant about a problem with my ear, and, out of sheer desperation, asked him to check my neck. April and May 2009 were going to be busy months. I had an ultrasound and biopsy two days later and was given the diagnosis of thyroid cancer two weeks later. Shopping. But I knew something was off, so I went to the doctor and had my thyroid checked. In February 1974 I found a lump in my neck which shouldn’t have been there, so went to my GP. I found out 18 months later that I had been given a ‘double dose’ of radioiodine, twice the standard dose. © 2014 Thyroid Cancer Support Group - Wales l Disclaimer l All Rights Reserved. Courtesy Christine Coppa. I knew I had to get myself into a positive place to beat it. The 2016 MasterChef finalist was diagnosed with thyroid cancer aged 33, after he had ignored a lump in his neck for more than a year. Thyroid Cancer: My Story In the fall of 2011, three months after my wedding, I began to experience some strange health issues including an irregular heartbeat and panic attacks. I have seen many doctors who just put the damage down to the high dose of radio-iodine. … It can be challenging for busy nurses to keep up to date with rapidly changing guidelines and new evidence around best practice and effective clinical management. About this booklet. We are the only registered charity in Wales supporting this rare form of cancer   l    Tel: 0845 009 2737   l   Registered Charity No 1113774. In 2008 and 2009 I felt fatigued. Survival for all types and stages of thyroid cancer. In late 2000 I went to my GP complaining of aching in my back which would come and go every few weeks. My new doctors tell me that I would have died. Newlywed, 26, discovers she has thyroid cancer after bumping into eagle-eyed doctor on her HONEYMOON in Cyprus. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. We try to publish all stories that may offer hope and inspiration to us all. Sarah’s Story. At age 32, Perry was diagnosed with papillary thyroid cancer and had a partial thyroidectomy with partial neck dissection because of metastasis to the lymph nodes. It had been a little low after the thyroidectomy but it was never checked again and had just got lower and lower over time. I went to a specialist clinic in Manchester where facial nerve palsies are treated by using a Neuro-4 stimulator daily (I had to put eight probes on my face for an hour per day and electric shocks were sent through to stimulate the nerve). In April 2010 I went back in to hospital to have my left parotid salivary gland removed, but unfortunately it was so badly damaged it had literally set like cement over my facial nerve and I sustained a facial nerve palsy. Hi, my name is Sarah, and I'm 37. So amidst the numerous follow-up appointments and recovery I had to undergo interviews to keep a job.
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